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Research for People Living with Crohn’s Disease or Colitis

A co-creation project to understand what social & economic factors have the biggest impact on people living with Crohn’s and colitis in the UK

Overview

This project was run by Egality from start to finish. Funded by Crohn’s & Colitis UK, Egality were selected to undertake a co-creation project to understand what social and economic factors have the biggest impact on people living with Crohn’s and colitis in the UK. This research would feed into Crohn’s & Colitis UK’s public dashboard and involved recruiting people from diverse ethnic and socio-economic backgrounds to understand which socio-economic factors have the most impact on their day to day lives.

Outcomes

  • Recruitment campaign across 30+ social media channels (Instagram, Facebook, LinkedIn, X (formerly Twitter), as well as newsletters and WhatsApp groups
  • Top performing social media post hit 525 likes and 27 comments
  • Recruitment period initially planned for 8 weeks; however, received 143 sign-ups within 3 weeks, from a diverse range concerning ethnicity, gender, age, UK region and income
  • Worked with 12 participants to identify the top 12 socio-economic factors that have an impact on their day to day lives through interviews and a prioritisation workshop

“Partnering together with Egality Health has been an incredible experience! The team are very professional and forward-thinking, with an excellent approach to taking on any feedback given. They made great efforts to keep us updated on the project with regular check-ins at each stage and as partners, we felt valued in being able to provide our insight into the project we worked together on.”

Sharan K
Patient Advocate & Co-Founder of South Asian IBD Alliance

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