Egality Resources

Patients As Partners Europe

2026

A Collaborative Effort to Achieve Representation in Clinical Trials: Parkinson’s Health Equity Board

  • UCB’s approach in bringing together the Parkinson’s Health Equity Board – Strategic guidance and shared expertise

  • Board’s focus on inclusive protocol/study design and raising awareness of R&D

  • Challenges, solutions and impact to date

  • Key learnings to achieve greater diversity in clinical trials

Click the button below to read the panellists’ speaking points.

Egality’s Equity Exchange

Series of online thought leadership

Insights from multiple panel discussions hosted by Egality with key stakeholders in the UK research system on:

  • Making Clinical Trials Inclusive and Effective for All (July 2025)
  • Building Community Trust in the Pharmaceutical Industry (October 2025)
  • Trust & Truth: Addressing Fraudulent Participation in Online Research (November 2025)
  • Supporting under-served communities in mental health research (April 2026)

 Watch a recap of our sessions on our YouTube channel below!

Making clinical trials inclusive and effective for all – a panel discussion

July 2025

Insights from a panel discussion hosted by Egality with 4 key stakeholders in the UK research system to discuss what pharmaceutical companies can do, in partnership, to make clinical trials more inclusive and effective for all.

Advancing Clinical Trials – Making the UK a global leader in inclusive clinical trials

May 2025

Insights from a roundtable discussion with key stakeholders in the UK research system – organised by the Faculty of Pharmaceutical Medicine, in partnership with Paddington Life Sciences and Egality.

BCBH | Inclusive research: strengthening partnerships with diverse ethnic communities

April 2025

This summary describes work done by the Better Collaboration Better Health Project (BCBH), which was funded by the UK National Institute for Health and Care Research.

Using radio and other media to recruit diverse participants for clinical trials – insights from a roundtable discussion

February 2025

This report shares key findings from the ‘DEI in Clinical Trials – Radio and other media’ roundtable. It shares a summary of discussions including supporting evidence, case studies, and recommended next steps to inform researchers and health system stakeholders about using radio and other media to enhance equity, diversity, and inclusion (ED&I) in clinical research.

Experiences of health research – A discussion with LGBTQ+ community organisations

May 2023

A write-up of discussions with three LGBTQ+ community organisations, exploring community experiences of taking part in health research and engaging with the health sector.

Talking about involvement in research in an accessible way to involve a range of people
May 2022

Short guide summarising discussions with community organisations and CRIG members on how to increase the diversity of people involved in research.    

Improving diversity in health research and trials – discussion with medical research charities

May 2021

Report summarising focus groups Egality held with 17 medical research charities. Includes recommendations and resources for anyone who wants to improve research diversity.

Principles of engagement

Principles of engagement

Egality and our Advisory Board co-developed these principles. They are a guide to any organisation working with community organisations to conduct health research. The principles set out best practice to ensure fair and effective collaboration between community organisations and the health and life science sector. Community organisations in our network have placed their logos on this document as a symbol of their support.

Sign-up to our principles of engagement

Join our call for higher standards when working with community organisations in health research. If you’re a community organisation you can show your support by attaching a png version of your logo for the Principles, or emailing team@egality.health

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