Overview
Egality supported a collaborative initiative involving Macmillan Cancer Support, a global top-10 global pharmaceutical company, the NHS Race and Health Observatory, and Barts Health NHS Trust, to increase participation of among African, Caribbean and South Asian communities in breast cancer clinical trials.
To inform the work, the Caribbean and African Health Network (CAHN) and South Asian Health Action (SAHA) facilitated community workshops to understand what types of communication materials would effectively raise awareness and improve understanding of clinical trials among under-served groups.
Building on these insights, Egality led the development of tailored communication materials, including a co-design workshop with people with lived experience to ensure that both messaging and design were inclusive, accessible, and reflective of community needs.
You can read more about this project here.
Outputs
Egality collaborated with partners to develop a suite of tailored communication materials designed to be accessible and inclusive for African, Caribbean, and South Asian people living with breast cancer, as well as their families and carers. These materials included:
- Patient and carer resources, including a leaflet and a detailed handbook explaining the purpose and benefits of clinical trial participation, and addressing key questions raised in the community workshops.
- A healthcare professional handbook to support clinicians in discussing clinical trials with patients and carers in a culturally sensitive and informed manner.
- A series of talking head videos, featuring individuals from African, Caribbean and South Asian communities sharing their personal experience of clinical trials.
- Translated materials, with all written resources and videos available in Bengali, Turkish, and Urdu.
These materials are now being used across stakeholder organisations, including NHS sites, and recruitment into breast cancer clinical trials will be monitored as part of the programme.
For more videos and patient stories, click here.
